{"id":3121,"date":"2016-08-25T12:06:19","date_gmt":"2016-08-25T12:06:19","guid":{"rendered":"http:\/\/dataethics.eu\/?p=3121"},"modified":"2016-09-27T20:38:56","modified_gmt":"2016-09-27T20:38:56","slug":"nye-personal-data-stores-give-individer-datakontrollen-tilbage","status":"publish","type":"post","link":"https:\/\/dataethics.eu\/da\/nye-personal-data-stores-give-individer-datakontrollen-tilbage\/","title":{"rendered":"Nye ‘personal data stores’ vil give individer datakontrollen tilbage"},"content":{"rendered":"

Forestil dig, at du f\u00e5r en reminder over mobilen, hver gang det er tid til at tage medicin. At du kan optimere din privat\u00f8konomi ved at sammenkoble dine kreditkortoplysninger med el- og vand-regninger, husleje, bankkonti og kalender. At du kan bek\u00e6mpe jetlag ved at kombinere dit s\u00f8vnm\u00f8nster og helbredstilstand med dine rejseplaner.<\/p>\n

Med termostater i hjemmet sammenk\u00f8rt med din kalender, lokationsdata og vejrdata kan du sikre, at dit hus er opvarmet og ventileret efter vejrforholdene. Og med indk\u00f8bssedler og lokationsdata kan du f\u00e5 en alert, n\u00e5r du passerer en butik, der har netop det, du har brug for, p\u00e5 tilbud.<\/p>\n

Der er mange visioner i forhold til de m\u00e5der, vi kan bruge data p\u00e5 til fordel for os selv som individer. Men i dag sidder store kommercielle virksomheder og staten p\u00e5 de mange data og bestemmer, hvad der er relevant for dig. Persondata er f\u00f8rst og fremmest til gavn for de industrier eller stater, der kontrollerer dem \u2013 frem for at gavne personen selv.<\/p>\n

Der er en bev\u00e6gelse i gang i is\u00e6r Europa for at \u00e6ndre den digitale infrastruktur, hvor individer bliver mere og mere gennemsigtige og ikke har kontrol over egne data. Bev\u00e6gelsen, der vil vende multinational bestemmelse til selvbestemmelse, er s\u00e5 ny, at der ikke er et f\u00e6lles begreb for den. Det kaldes alt fra ‘personal data stores’, (PDS), ‘personlig information management systems’ (PIMs), MyData, Self Data eller ‘Vendor Relationship Management’, (VRM \u2013 modsat Customer Relationship Management, CRM). Udover at v\u00e6re et gryende marked til tider drevet af meget tydelige kommercielle interesser, er det fremf\u00f8rte form\u00e5l med dem alle at give individer kontrol over deres data i relation til sundhed, penge, rejser, bolig, indk\u00f8b og andre persondata.<\/p>\n

I denne nye infrastruktur vil multinationale selskaber, sm\u00e5- og mellemstore virksomheder og den offentlige sektor stadig v\u00e6re store spillere, men ideen er at skabe rammerne for en ny mellemmand, der st\u00e5r imellem dem og individer, nemlig PDS-sektoren, konstaterer rapporten \u2018Personal Data Stores\u2019<\/a> udarbejdet af University of Cambridge p\u00e5 vegne af Europa-Kommissionen.<\/p>\n

Rapporten definerer en PDS som en teknologi, der g\u00f8r individer i stand til at samle, opbevare, opdatere, korrigere, analysere og dele personlig data. S\u00e6rligt vigtigt er muligheden for at give eller tilbagetr\u00e6kke samtykke til tredjeparters adgang til ens data. Man s\u00e6tter s\u00e5 at sige sine egne privatlivsindstillinger.<\/p>\n

Den anerkendte forfatter til The Cluetrain Manifesto<\/a>, Doc Searls leder p.t. <\/span>et projekt p\u00e5 Harvards Berkmann Center, ProjectVRM<\/a>, der har til form\u00e5l at give forbrugerne kontrollen over deres data i en levenrand\u00f8r- kunde kontekst. Han forudser, at markedsf\u00f8ring p\u00e5 internettet, som vi kender den i dag, vil spille fallit, fordi folk er tr\u00e6tte af dens fejlagtige personalisering, baseret p\u00e5 kontant monitorering og overv\u00e5gning af deres data. De er begyndt at kr\u00e6ve kontrollen tilbage med ad blockers etc., og p\u00e5 den m\u00e5de har de vundet en\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 “forhandlingsposition med annonc\u00f8rer og udgivere\u201d<\/a>, siger han. Med ProjectVRM vil han forbedre markederne ved at give kunderne redskaber til ikke bare at blive uafh\u00e6ngige af leverand\u00f8rerne, men faktisk ogs\u00e5 at engagere sig bedre med dem.<\/p>\n

Non-profit personal data stores<\/strong>
\nDATA for GOOD Foundation. Sundhedsdata kombineret med adf\u00e6rdsdata styret af det enkelte individ. Det er cocktailen p\u00e5 den st\u00f8rste danske PDS-satsning. Den erhvervsdrivende almennyttige fond, DATA for GOOD Foundation, stiller en platform til r\u00e5dighed, Line2Life, der kan samle borgerens helbredsoplysninger, syge- og skadesulykker samt relevante adf\u00e6rdsoplysninger og parre dem med sociale data som fx uddannelse, arbejde, v\u00e6gt, alder, bolig, fritidsinteresser samt relevante selvm\u00e5ler-data s\u00e5som blodtryk, s\u00f8vn og skridt-pr-dag. Alle disse data har det enkelte individ adgang til og kontrol over og kan bruge til at forbedre sin livsstil og -kvalitet. Forsikrings- og pensionsselskaber, kommuner, forskere og andre tredjeparter har kun adgang til disse data i anonymiseret form \u2013 de f\u00e5r ikke konkrete persondata, men indsigt i kundernes adf\u00e6rd og m\u00f8nstre. De kan s\u00e5ledes ikke sige, at du, Gitte p\u00e5 35 \u00e5r, har en for\u00f8get risiko for at f\u00e5 stress, men de kan f\u00e5 generel data om adf\u00e6rd, der \u00f8ger risikoen for stress for kvinder p\u00e5 35 \u00e5r med den og den profil. DATA for GOOD Foundation vil dermed blandt andet v\u00e6re med til at sikre, at mikrotarifering, det vil sige beregning af pr\u00e6mier for individer, sker etisk forsvarligt, og at solidaritetsprincipperne blandt forsikring- og pensionsselskaber ikke g\u00e5r tabt. Derudover vil DATA for GOOD Foundation stille v\u00e6sentlig ny indsigt til r\u00e5dighed for borgeren, som kan aktiveres i form af handlingsorienterede indsatsplaner, nudging og benchmarkingmuligheder med udgangspunkt i den enkelte brugers profil.<\/p>\n

Kommercielle personal data stores<\/strong>
\nCitizenme. Denne britiske PDS giver dig indsigt i dig selv og penge for at dele dine data med virksomheder, der \u00f8nsker mere indsigt. Alt fra dine Facebook-likes til dit postnummer samles hos Citizenme, og det er kun dig, der har adgang til dine data. Citizenme lagrer ikke data og har ikke adgang til dine data, medmindre du giver firmaet adgang, fordi du \u00f8nsker at f\u00e5 kontant betaling for, at firmaer kan f\u00e5 indsigt i dig og din adf\u00e6rd. Med andre ord f\u00e5r du penge for at v\u00e6re med i bruger- og opinionunders\u00f8gelser. Citizenme er europ\u00e6isk og efterlever dermed den europ\u00e6iske datalovgivning. If\u00f8lge CEO og grundl\u00e6gger StJohn Deakins har Citizenme gjort sig s\u00e6rligt umage for at formidle sin privatlivspolitik, s\u00e5 den er til at forst\u00e5 for ikke-advokater.<\/p>\n

Bogen \u2018Dataetik – den nye konkurrencefordel\u2019 indeholder en stribe andre eksempler p\u00e5 personal data stores. Denne nye nye infrastruktur stiller ogs\u00e5 krav til, at individer tager ansvar for og h\u00e5nd om egne data. Derfor er der m\u00e5ske mange, som ikke hopper p\u00e5 b\u00f8lgen med det samme, hvorfor der bliver brug for tillidsv\u00e6kkende organisationer, der kan agere mellemm\u00e6nd og g\u00f8re det p\u00e5 vegne af andre. I hvert fald indtil det bliver lige s\u00e5 nemt at drive sin egen personlige data store, som det er at \u00e5bne en Instagram konto.<\/p>\n

Ovenst\u00e5ende er baseret p\u00e5 uddrag af bogen \u2018Dataetik – den nye konkurrencefordel<\/a>\u2019<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Forestil dig, at du f\u00e5r en reminder over mobilen, hver gang det er tid til…<\/p>\n","protected":false},"author":14,"featured_media":3126,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[148,108,2],"tags":[1077,599,925,1073,597,1075],"class_list":["post-3121","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog","category-nyt","category-nyheder","tag-mydata","tag-pds","tag-personal-data-stores-da","tag-personal-informations-management-systems","tag-pims","tag-vrm"],"yoast_head":"\nNye 'personal data stores' vil give individer datakontrollen tilbage · Dataetisk Tænkehandletank<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dataethics.eu\/da\/nye-personal-data-stores-give-individer-datakontrollen-tilbage\/\" \/>\n<meta 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