{"id":2298,"date":"2016-03-26T18:19:44","date_gmt":"2016-03-26T18:19:44","guid":{"rendered":"http:\/\/dataethics.eu\/?p=2298"},"modified":"2016-07-31T10:23:12","modified_gmt":"2016-07-31T10:23:12","slug":"etiske-risici-frugtbarheds-tracking","status":"publish","type":"post","link":"https:\/\/dataethics.eu\/da\/etiske-risici-frugtbarheds-tracking\/","title":{"rendered":"Etiske risici i apps, der tracker fertilitet"},"content":{"rendered":"

Blog. Investorer h\u00e6lder penge i apps, som giver kvinder mulighed for at tracke deres frugtbarhed. Det kan v\u00e6re godt for par, der \u00f8nsker at kontrollere, hvorn\u00e5r de vil have b\u00f8rn og for forskningen. Men der er store privacy sp\u00f8rgsm\u00e5l her, da vi taler om meget f\u00f8lsomme data. Og flere trackere synes ikke at tage tilstr\u00e6kkeligt hensyn til det. Der er dog en app, som synes trov\u00e6rdig.
\n<\/strong><\/p>\n

\"danskformenstruation\"
Ord for menstruation. Hentet fra http:\/\/www.helloclue.com\/survey.html<\/figcaption><\/figure>\n

Omkring halvdelen af alle mennesker har menstruationer det meste af deres liv, men alligevel ved vi ufatteligt lidt om dem. F\u00e5 forskere har unders\u00f8gt, hvorfor det er smertefuldt for nogle og legende let for andre. Men en ny tendens – fitbit for fertilitet – vil der blive indsamlet masser af ny viden omkring hvorfor og hvordan.<\/p>\n

Fertilitets-tracking can – praktiseret korrekt – v\u00e6re lige s\u00e5 effektiv som p-piller til at forhindre graviditet. Og modsat en perfekt m\u00e5de at planl\u00e6gge graviditet. De kan ogs\u00e5 forbedre patienters viden om deres fertilitet og kommunikationen med deres l\u00e6ger.<\/p>\n

If\u00f8lge en artikel i Guardian omkring f\u00e6nomenet<\/a> er i hobevis af investorer interesserede i disse tracking apps i den tro, at de kan revolutionere reprodutionen og relateret medicin ved at indsamle hidtil usete m\u00e6ngder at data om kvindens krop.<\/p>\n

Men ser man n\u00e6rmere p\u00e5 de apps, der er omtalt i artiklen, Glow <\/a>og Kindara<\/a>, ville jeg v\u00e6re meget tilbageholdende med at bruge dem. De praktiserer ikke kun lange, uforst\u00e5elige privatlivspolitikker. De har ogs\u00e5 hoveds\u00e6de i USA, hvor der strenge datalove, som regulerer hospitaler og deres mulighed for at dele data om deres patienter. Men disse regler g\u00e6lder ikke for mobile apps. De falder if\u00f8lge The Guardian ind under forbruger-privatlivs-lovgivningen, som tilbyder et meget lavere beskyttelsesniveau. Og netop data i fertilitets-tracking er s\u00e6rligt sensitive. For eksempel beder Glow om information omkring den seksuelle position ens partner har, n\u00e5r han har s\u00e6dafgang.<\/p>\n

Anonyme cyklus-data<\/strong><\/p>\n

Hvis jeg skulle v\u00e6lge en fertilitets-tracker, ville jeg g\u00e5 efter den tysk-baserede Clue<\/a> med en dansk CEO, Ida Tin. Modsat Glows og Kindaras privatlivspolitikker, der er skrevet af advokater for advokater, fort\u00e6ller Clue p\u00e5 en meget forst\u00e5elig m\u00e5de, hvad man kan og ikke kan. Man kan f.eks. bruge Clue uden en konto, hvor Clue ikke aner, hvem man er, hvor ens cyklus-data bliver p\u00e5 ens gadget uden, at Clue har adgang til den, og hvis man sletter sine data eller mister sin telefon, slettes ens data fuldkommen.<\/p>\n

Man kan ogs\u00e5 bruge Clue med en konto og s\u00e5 bruger Clue ens data i anonymiseret form til\u00a0 klinisk og akademisk forskning, til data-visualisering og til at skabe forudsigelser om ens cyklus.<\/p>\n

Ydermere er ens cyklus-data lagret separat fra ens personlige data, som sikrer, at de er anonyme.<\/p>\n

Netop s\u00e5dan en forst\u00e5elig privatlivspolitik samt det, at tyske myndigheder tager databeskyttelse meget alvorligt, er nok for mig til, at Clue er en trov\u00e6rdig service.<\/p>\n

Opdatering: ConsumerReport i US har siden testet Glow<\/a> og fundet alvorlige datasikkerhedsm\u00e6ssige problemer.<\/p>\n","protected":false},"excerpt":{"rendered":"

Blog. Investorer h\u00e6lder penge i apps, som giver kvinder mulighed for at tracke deres frugtbarhed….<\/p>\n","protected":false},"author":1,"featured_media":2299,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[148,36,2],"tags":[758,756,760,762],"class_list":["post-2298","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog","category-forretningsmodeller","category-nyheder","tag-clue","tag-fertilitets-tracking","tag-glow","tag-kindara"],"yoast_head":"\nEtiske risici i apps, der tracker fertilitet · Dataetisk Tænkehandletank<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/dataethics.eu\/da\/etiske-risici-frugtbarheds-tracking\/\" \/>\n<meta property=\"og:locale\" content=\"da_DK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Etiske risici i apps, der tracker fertilitet · Dataetisk Tænkehandletank\" \/>\n<meta property=\"og:description\" content=\"Blog. 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