European Data Ethics Forum 2019

Presentations from Data Ethics Forum 2019
(agenda and bios below)

(get a PDF version EDEF19-program-10-pdf)

Welcome and status on data ethics, by Pernille Tranberg, co-founder
Keynote: Paul Nemitz on how Europe is working on being a data democracy as opposed to China's data dictatorship and the US data monopoly society. Nemitz is Principal Advisor in the EU Directorate General for Justice and Consumers.
AI & Ethics Cases and Discussion - Camilla Gjetvik, Chief Operating Officer, on how Boost makes and markets chatbots in fierce competion with global players - Loubna Bouarfa, CEO and founder, on how Okra works ethically with artificial intelligence in healthcare.
European High-Level Expert Group and AI and Ethics, Gry Hasselbach member of the group and co-founder of will give a status
LUNCH & networking & other breaks
- Meet our cool sponsors (Mozilla and Eyeo)
- Discuss data ethics in practise. Share common pitfalls, view, tips and tricks with Piek Visser-Knijffl privacy and data-ethicist
What is Data Ethics and Discussion
EmailPlatform - CEO and founder Kim Østergaard about EmailPlatform is a competitor to MailChimp working with GDRP and ethics. What are the challenges as a fast growing start-up?
Aarhus Municipality - Mikkel Højbjerg, digital site manager, on how the second largest municipality in Denmark is implementing data ethics
Denmark's Data Ethics Council, Rikke Hvilshøj, director of Danish IT, is a member and will give a status
Individual Data Control and Discussion
Solid. Mitzi László is the Community Manager of Solid, a Tim Berners-Lee led initiative with the goal to decentralise power on the web to ensure that it is used for the global public good
MAIF/MyData - Sarah  Medjek from the University of Paris Nanterre will tell about how the French teachers' owned insurance company MAIF  is giving back data to their customers, and how individual data control impact individuals' attitudes and behavior
Data Ethics in Practise by Peter Wells, Open Data Institute
Keynote.  Ingrid Ødegaard, founder of the Norwegian browser video service (formerly on how they focus on privacy in a global competitive video market.
Wrap-up by Hans Ravnkjær Larsen, Dansk IT

Speakers bios

Mitzi László, Solid. Mitzi is the Community Manager of Solid, a Tim Berners-Lee led initiative with the goal to decentralise power on the web to ensure that it is used for the global public good. She's based in Amsterdam, has trained as a neuroscientist specialised in decision making and is a Data Ethics Auditor with The European Commission, where she is auditing EU funded research consortia from an ethics perspective. Find her here.

Loubna Bouarfa. OKRA Technologies. Loubna is a machine learning scientist turned entrepreneur. Founder and CEO of OKRA Technologies - an artificial intelligence data analytics company for healthcare. OKRA allows healthcare professionals to combine all their data in one place and generate evidence-based insights in real time, to save and improve human lives. Loubna is currently a member of the European Union High-Level Expert Group on Artificial Intelligence, where she is particularly focused on healthcare and achieving competitive business impact with AI. She was named an MIT Technology Review Top Innovator Under 35, and is featured on Forbes first-ever 50 Top Women In Tech list. On a personal level, she is a strong advocate for diversity, women and challenging the status quo.

Paul Nemitz. Paul is Principal Advisor in the EU Directorate General for Justice and Consumers. He was appointed by the European Commission on 12. April 2017, following a 6 year appointment as Director for Fundamental Rights and Citizen’s Rights in the same Directorate General. As Director, Nemitz led the reform of Data Protection legislation in the EU, the negotiations of the EU – US Privacy Shield and the negotiations with major US Internet Companies of the EU Code of Conduct against incitement to violence and hate speech on the Internet. He has represented the European Commission in numerous cases before the European Court of Justice and has published widely on EU law.

Gry Hasselbalch. Gry is member of the European Commission's high level group on AI and ethics developing ethics and policy guidelines for AI in Europe, and co-chair of the P7006 standard within the IEEE's Global Initiative for Ethical Considerations in AI and Autonomous Systems.  She is also co-founder of and co-author of DataEthics - the New Competitive Advantage.

Kim Østergaard.
Kim is the CEO & Founder at eMailPlatform & MarketingPlatform, a multiple Gazelle company and Winner of the Digital Gazelle and Entrepreneur of the Year. The company is a competitor to the widely used MailChimp for newsletters. He has 20 years professional experience with e-commerce, and his current company is fast growing and among the customers are Applus, Bauhaus, Gallup, Handelsbanken, LEGO, Lions, Merck and UNICEF.

Mikkel Højbjerg. Mikkel is Digital Site Manager at Aarhus Municipality. Mikkel has a solid background in managing large government websites. He is project lead - responsible for development and technical updates to Aarhus Municipality's multisite solution. He is based in Aarhus, Denmark - has a Master of Arts, Multimedia from Aarhus University.

Camilla Gjetvik. Camilla is the Chief Operating Officer of Having risen through the ranks as one of the company’s first employees, she continues to use her willpower, ambition and determination to grow a company that’s ready for a future as a global tech powerhouse. She was recently nominated one of Norway’s top 50 females in Tech by the Confederation of Norwegian Enterprise (NHO). Camilla specializes in business management and law, and has extensive experience from contract management and negotiations in the energy sector before entering the tech industry with".

Peter Wells, Head of Policy at the Open Data Institute (ODI) in London, works with governments and businesses around the world to make data as open as possible for those who need it, so that data can help inform the decisions we make as individuals, organisations and societies. The ODI was co-founded by the inventor of the web Sir Tim Berners-Lee and AI expert Sir Nigel Shadbolt to address today’s global challenges using the web of data. Peter spent over 20 years in the telecommunications industry working with both telecommunications companies and regulators to investigate new technologies, transform businesses and launch new products. Before joining the ODI, Peter worked in a voluntary role to organise an independent review of digital government policy for the Labour Party, and for Open Addresses Limited to experiment with creating a collaboratively maintained open address register. He’s a longstanding fan of Blackpool FC.”
Sarah Medjek is a researcher at the University of Paris Nanterre, her research focuses on the concept of Self Data/MyData and its impact on individuals' attitudes and behavior, particularly in terms of adoption, trust and privacy concerns. She has collaborated on various experiments such as the MesInfos Pilot, and since November 2018, she is MyData Global Board of Directors Chairwoman.
Rikke Hvilshøj is managing director of the Danish Association of IT Professionals (Dansk IT) who is partner organizer at this conference. She is a former minister and politician for the party Venstre and is member of the Danish governments Commission on Data Ethics, who started its work this year. Read more here.
Ingrid Ødegaard. Ingrid is the founder & Chief Product and Technology Officer of Whereby (forrmerly She is an economist and has worked for Telenor where she and a team developed the idea behind Whereby. She loves working in the intersection between tech, design and business, and has her vision set on changing the way people work.


From the conference 10th October 2019

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Read all about the European Data Ethics Forum 2017 and 2018

Among our earlier speakers are Margrethe Vestager (2016), Frank Pasquale (2016), Evelyn Rupert (2017), John C Havens IEEE (2017), Dieter Rasmussen LEGO (2017), Marit Hansen (2018), Laura Dornheim AdblockPlus (2018), Dan Shefet (2018), Cecile Wendling Axa (2018). And Edulab,, Tresorit, Clue, Playwall, Cliqz, Wire, Findx and Purism. See them all here.

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